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Patients with hemophilia may need to make several lifestyle adjustments as a result of their condition. For example, they cannot have intramuscular injections when they receive immunizations, because these injections have the potential to cause internal bleeding. They should also avoid medications that may interfere with blood clotting, including aspirin, ibuprofen and other nonsteroidal anti-inflammatory drugs. Patients who are having dental work may need to take medications in advance of their appointment to prevent bleeding.
In the past, blood transfusions were a source of danger for patients with hemophilia because of possible contamination of donated blood products. However, in recent years, improved donor screening techniques and the use of recombinant clotting factors have substantially reduced or even eliminated the risk of transmission of viruses such as HIV or hepatitis during transfusions. Nonetheless, patients with hemophilia may want to consider receiving immunization against hepatitis A and B.
Patients with mild hemophilia often can participate in a full range of activities. Exercise can help build muscle, which provides extra protection for the joints. However, those with severe hemophilia may need to avoid contact sports and other activities that have a higher probability of causing injury to the participant (e.g., football, hockey, wrestling).
People with hemophilia and parents of children with hemophilia may want to order medical identification bracelets or necklaces that explain their condition. Parents also are urged to tell babysitters, school officials, coaches and others of the child’s condition. It is also advisable to explain the circumstances under which it may be necessary to call emergency medical services. |