Preparing questions in advance can help individuals to have more meaningful discussions with physicians or healthcare professionals regarding their condition. Patients or parents may wish to ask their doctor the following questions about Marfan syndrome:

1. What features do I have that definitively indicate Marfan?
   
   
2. Is there a chance I have another syndrome?
   
   
3. What tests will be used to diagnose the condition?
   
   
4. What specialists do I neeed to see for my condtion?
   
   
5. If I have heart problems, what type do I have?
   
   
6. What are the treatment options for my heart condition?
   
   
7. Will I need to take medication? If so, what type and for how long?
   
   
8. How will you know if I need surgery for my heart condition?
   
   
9. Can my heart problems cause serious complications?
   
   
10. Will my condition worsen as I get older?
    
    
11. Can you recommend a genetic counselor?
    
    
12. If I have one child with Marfan, are my risks higher for the next child?
    
    
13. Am I candidate for a clinical trial?
    
    
14. Can you recommend a support group for me?