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SIDS

Also called: Sudden Infant Death Syndrome, Crib Death

- Summary
- About SIDS
- Risk factors and causes
- Prevention methods
- Coping with SIDS
- Ongoing research
- Questions for your doctor

Reviewed By:
Robert Daigneault, M.D

Coping with SIDS

Families that lose a child to SIDS (sudden infant death syndrome) suffer a devastating loss. Parents often suffer from both grief and guilt when their child dies of SIDS. It is important to realize that SIDS may occur no matter how much a parent loves or tries to protect their child. SIDS may also strain a marriage, and grieving parents may not be able to comfort each other.

Parents of SIDS infants should seek emotional support. They may ask their physician about available community resources, support groups or even other SIDS parents who may be available to talk. Sharing thoughts and feelings in online chat rooms, with friends, family members and counselors may also help. Some national groups (e.g., Sudden Infant Death Syndrome Alliance) may be able to provide grief counseling, support and referrals.

At the time of death, it is important for parents to be able to hold their child one last time. Some parents may want to keep a lock of hair or make footprints or handprints of their baby. Parents may find it helpful to memorialize their child. A funeral or memorial service with photos and the child’s favorite toys or blanket may help commemorate the child’s life and help surviving family members to acknowledge the child’s death. In addition, it is important that grieving parents continue to maintain their physical health (e.g., eat healthy foods, get regular exercise, get adequate rest).

 

Ongoing research regarding SIDS

Scientists continue to research the causes of SIDS (sudden infant death syndrome) in hopes of preventing it. The complexity of the infant’s body and the rapid changes associated with the first year of life mean there are numerous areas to investigate. Research has concentrated on environmental factors such as smoking and even air pollution. Other studies have concentrated on heart and brain irregularities. None has been conclusive in identifying any singular condition as a cause of SIDS.

In addition, two new studies suggest a possible link between mutations in genes that are associated with potentially deadly heart rhythms (arrhythmias), particularly the SCN5A gene, with an increased risk of SIDS. However, more research is needed before this can be identified as a risk factor for the condition.

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Review Date: 07-23-2007
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