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Preparing questions in advance can help patients have more meaningful discussions with their physicians regarding their conditions. Patients may wish to ask their doctor the following questions about lupus:
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Could my joint pain, rashes or other symptoms be due to lupus? What other conditions could be causing my symptoms?
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How is lupus diagnosed? What tests do you recommend for me? What do these tests involve?
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What do my test results show? What form of lupus do I have?
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Do I also have overlap symptoms of other conditions such as rheumatoid arthritis or scleroderma?
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What might have caused my lupus?
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What is the expected course of my case of case of lupus? Is it temporary or lifelong? Is it likely to come and go, remain steady, improve or worsen?
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What are my treatment options? Which do you recommend?
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At what point should I notify you if my medication is causing side effects? Does my medication require that I have screening tests of my vision or anything else?
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Do I need to see any specialists?
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How can I prevent or control flares?
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What exercises do you recommend? How can I tell when I should exercise and when I should rest?
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Should I make any adjustments in my diet? Should I see a dietitian? Do I need supplements of vitamin D, calcium or anything else?
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Do I need to avoid the sun or strong artificial light?
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Do I need regular medical appointments even when I'm in remission and feeling fine?
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Do you recommend occupational therapy, physical therapy, stress management techniques, support groups or anything else to help me cope?
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Should I be monitored for osteoporosis with a DEXA scan or other test? How often?
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Is it safe for me to use birth control pills or take estrogen?
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Can I have a safe pregnancy with SLE? Is it important for me to time my pregnancy during a long period of remission?
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If my spouse or I have lupus, what are the chances that our baby will inherit it?
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Is lupus likely to run in my family? Should relatives undergo any testing or monitoring? Can it be prevented?
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Can any of my medications cause drug-induced lupus or worsen my systemic lupus?
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