Preparing questions in advance can help patients and parents have more meaningful discussions with their physicians regarding their or their child’s treatment options. The following questions related to Treacher Collins syndrome may be helpful:

1. When will I first see signs of Treacher Collins syndrome in my child?
   
   
2. What tests will you need to perform to identify Treacher Collins syndrome?
   
   
3. What is the likely cause of my child’s Treacher Collins syndrome?
   
   
4. What are my child’s treatment options?
   
   
5. Which surgeries will be necessary? When will they begin and end?
   
   
6. How costly are these surgeries? Are they likely to be covered by insurance?
   
   
7. What expectations should I have regarding my child’s appearance following surgery?
   
   
8. How will you treat my child’s hearing loss?
   
   
9. Is speech therapy necessary for my child?
   
   
10. Is psychotherapy necessary for my child?  Can you recommend someone?
    
    
11. Should I be tested for Treacher Collins syndrome?