Test Your Knowledge

Preparing questions in advance can help parents to have more meaningful discussions with their child’s physicians. Parents may wish to ask their child’s doctor the following questions regarding xeroderma pigmentosum (XP):

1. Do my child’s symptoms indicate XP?
   
   
2. What tests will you use to determine if my child has XP?
   
   
3. Do you have experience treating patients with XP?
   
   
4. What type of XP does my child have? Is the condition terminal?
   
   
5. What may have caused my child to develop XP?
   
   
6. What XP-related complications is my child at risk for? What steps can we take to reduce these risks?
   
   
7. What are my child’s treatment options? How effective are the treatments?
   
   
8. Must my child remain indoors during the day?
   
   
9. What specialists will my child need to see?
   
   
10. How often will my child require skin, vision and neurological examinations?
    
    
11. Will the symptoms of XP change as my child ages?
    
    
12. I have a child with XP. What are the chances that I might have another child with the disease?